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research-article | 28-November-2019

Barriers and Facilitators to End of Life Care in Huntington’s Disease – A review of the literature

people with HD; however, they suggest this approach remains in early developmental stages and requires significantly more work to address the barriers. Tarolli et al. (2017) highlight the challenges of specialist neurology services not necessarily being well equipped to manage the nonneurological end of life issues, including advance care planning and psychosocial support, while palliative care services are generally unfamiliar with the specific needs of people with HD. The most effective care may be

Ruth Hosken

Australasian Journal of Neuroscience, Volume 29 , ISSUE 2, 33–42

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