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Research Article

The Relationship between Personality Disorders and Quality of Life in Adolescent Outpatients

During recent years, there has been an increasing focus on the benefits of the early detection and treatment of personality disorders in adolescents. Previous studies of adults have shown that the number of personality disorder criteria met is negatively correlated with a patient’s quality of life and general functioning.The aim of the present study was to investigate the prevalence of personality disorders, particularly with regard to the correlation between the number of personality disorder

Hans Ole Korsgaard, Svenn Torgersen, Tore Wentzel-Larsen, Randi Ulberg

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology , ISSUE 3, 180–189

Original Paper

The quality of life of children with epilepsy in Poland – the opinion of children and their parents

Background. Every chronic illness, including epilepsy, has a negative effect on both the quality of life of the sufferer as well as on their relationship with their surroundings. Aims. To investigate the quality of life of children suffering from epilepsy and analyse how they assessed and scored their experiences compared to their parents. Materials and methods. The study included 209 children with epilepsy and their parents. The research tool was a questionnaire for gathering demographic and

Dorota Talarska, Michał Michalak, Patrycja Talarska

Journal of Epileptology , ISSUE 2, 105–113

Research Article

Finnish schoolchildren’s perceived health-related quality of life deteriorates remarkably with age

Background: Information on individuals’ functioning and disability is needed for numerous purposes in social and health care. Objective: The purpose of the study was to assess the perceived health-related quality of life of Finnish schoolchildren aged from 7 to 17 years. We were interested to ascertain if changes of health-related quality of life with age could be discovered. Method: The quality of life data (N = 4,776) were collected using Revidierter KINDer Lebensqualitä

Tarja Paakkonen, Heikki Paakkonen

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology , ISSUE 4, 152–158

research-article

Do ankle, hindfoot, and heel ultrasound findings predict the symptomatology and quality of life in rheumatoid arthritis patients?

Introduction Rheumatoid arthritis (RA) is a chronic and progressive systemic disease that leads progressively to joint damage and disability(1,2). Approximately half of patients with RA report foot or ankle joints symptoms as the first manifestation of the disease(3,4), and in time 71% of these patients develop walking disability(5). The quality of life (QoL) in RA patients is poorer compared to the general population, and even lower in those with foot involvement, especially regarding mobility

Oana Șerban, Iulia Papp, Corina Delia Bocșa, Mihaela Cosmina Micu, Maria Bădărînză, Adriana Albu, Daniela Fodor

Journal of Ultrasonography , ISSUE 81, e70–e82

Research Article

DEALING WITH HETEROSKEDASTICITY WITHIN  THE MODELING OF THE QUALITY OF LIFE  OF OLDER PEOPLE

Using the estimation method of ordinary least squares leads to unreliable results in the case of heteroskedastic linear regression model. Other estimation methods are described, including weighted least squares, division of the sample and heteroskedasticity-consistent covariance matrix estimators, all of which can give estimators with better properties than ordinary least squares. The methods are presented giving the example of modelling quality of life of older people, based on a data set from

Katarzyna Jabłońska

Statistics in Transition New Series , ISSUE 3, 423–452

Research Article

THE NEW URBANIST PRINCIPLE OF QUALITY OF LIFE FOR URBAN REGENERATION

Abstract Quality of life (QOL) is a crucial but complex concept, determined by the insights of multiple disciplines. This paper applies the holistic approach to planning known as New Urbanism (NU) to the analysis of QOL, and argues that this movement should no longer be thought of simply as dedicated to halting urban sprawl, but also as providing guiding principles for the process of urban regeneration within the city. The study therefore aims to verify the relationship between NU principles

Monika Maria CYSEK-PAWLAK

Architecture, Civil Engineering, Environment , ISSUE 4, 21–30

Research paper

AN INITIAL RESEARCH ON OUTPUT WELL-BEING INDEX APPLIED TO RESIDENTS IN WEALTHY COUNTIES FROM CHINA 

Sampling from three wealthy counties in Shandong province (n = 855), this research examined the characteristics of an output well-being index, and the index shows good internal consistency reliability and ideal construct validity. It could be used as an instrument to evaluate the quality of life of Chinese citizens. The index was applied to an analysis of the quality of life of the residents from three wealthy counties. It shows that the level of the quality of life of the rural residents is

Zhanjun Xing, Xiaxia Qu

Statistics in Transition New Series , ISSUE 3, 441–460

Research paper

USING THE DAY RECONSTRUCTION METHOD TO QUANTIFY TIME SPENT SUFFERING AMONG OLDER ADULTS WITH CHRONIC PAIN

associated with lower income, negative mood, and lower life satisfaction and quality of life.

Dylan M. Smith

Statistics in Transition New Series , ISSUE 3, 429–440

Review Paper

The epileptic multifactorial patient’s burden. Review of the topic

decreased quality of life. Decreased self-esteem and major stigma are also frequent, linked to social, economic and personal negative consequences. Age also plays a role, younger people being more stigmatized given the interdiction to drive or difficulty in getting a job. In the elderly, seizures may have an impact on mental status, mood and sleep. Gender may also contribute, particularly involving women in childbearing age, linked to the fear or depression due to the possibility of AED-induced

José Pimentel

Journal of Epileptology , ISSUE 2, 167–172

research-article

THE CONCEPT OF SMART CITY IN TERMS OF IMPROVING THE QUALITY AND ACCESSIBILITY OF URBAN SPACE FOR THE ELDERLY; LITERATURE REVIEW

1. INTRODUCTION The dynamically developing concept of smart city is seen as an opportunity to increase the efficiency of city management and to benefit from its resources, to ensure its sustainable development, to improve the quality of life of residents by providing better quality city services to residents, and thus to increase the competitiveness of the city [5]. In this concept, the city is defined as an ecosystem of smart solutions which is being developed, among others, owing to conscious

Anna SZEWCZENKO

Architecture, Civil Engineering, Environment , ISSUE 2, 27–35

Article

QUALITY OF LIFE AND POVERTY IN UKRAINE – PRELIMINARY ASSESSMENT BASED ON THE SUBJECTIVE WELL-BEING INDICATORS

The paper provides an overview of the information sources, methodology and main findings of the research of quality of life and poverty using indicators of subjective well-being applied by state statistics agencies in Ukraine. The paper describes the system of indicators for self-evaluation of the attained level of well-being, the level of satisfaction from meeting the basic living needs, and the limitations in consumption abilities of selected population groups due to hard conditions. In

Oleksandr Osaulenko

Statistics in Transition New Series , ISSUE 2, 237–247

Research Article

Psychiatric problems and quality of life in a clinical sample of adolescents: The role of peer relations

Background:The quality of peer relations is linked to mental health in childhood and adolescence, but few studies have investigated its clinical relevance. In particular, the potential mediating role of peer functioning in the associations between different dimensions of symptoms and quality of life (QoL) has not been sufficiently examined.Objective:In a clinical sample of adolescents, we examined peer relations in light of psychiatric diagnoses, as well as QoL and symptoms of mental health

Ingunn Ranøyen, Eva Gulliksrud, Marit S. Indredavik, Frode Stenseng

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology , ISSUE 4, 183–192

Research Article

Long-term outcome of children with autism who received different forms of early intervention during their preschool years: a pilot study of 15 young adults

, and 10 received eclectic treatment. Participants were followed from their first autism diagnosis during the preschool years (time 1) to the age of six years (time 2). The participants are now in their twenties (time 3), and at this point in time, information on autism symptoms, co-occurring disorders, quality of life, functioning, participation, adaptive behavior, and overall outcome was gathered from parents. Six of the participants answered questionnaires on quality of life, functioning, and

Sigrídur Lóa Jónsdóttir, Birta Brynjarsdóttir, Evald Saemundsen, Jón Fridrik Sigurdsson

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology , ISSUE 1, 28–39

Article

The Centrality of O&M in Rehabilitation Programs Designed to Enhance Quality of Life: A Structural Equation Modelling Analysis

Polly Yeung, Ph.D., Steven La Grow, Ed.D., Andrew Towers, Ph.D., Fiona Alpass, Ph.D., Christine Stephens, Ph.D.

International Journal of Orientation & Mobility , ISSUE 1, 10–20

Research paper

THE OFFICE FOR NATIONAL STATISTICS EXPERIENCE OF COLLECTING AND MEASURING SUBJECTIVE WELL-BEING

The UK Office for National Statistics (ONS) started measuring subjective well- being in 2011 as part of the ONS Measuring National Well-being programme. The aim of the Measuring National Well-being programme is to measure the quality of life and progress of the UK. This article explores the development of the ONS subjective well-being measures, data collection methods, data presentational considerations, overview of findings, and latest developments. It discusses the way in which user

Lucy Tinkler

Statistics in Transition New Series , ISSUE 3, 373–396

Research Article

INDEX FINGER MOTION RECOGNITION USING SELF-ADVISE SUPPORT VECTOR MACHINE

Because of the functionality of an index finger, the disability of its motion in the modern age can decrease the person’s quality of life. As a part of rehabilitation therapy, the recognition of the index finger motion for rehabilitation purposes should be done properly. This paper proposes a novel recognition system of the index finger motion suing a cutting-edge method and its improvements. The proposed system consists of combination of feature extraction method, a dimensionality reduction

Khairul Anam, Adel Al Jumaily, Yashar Maali

International Journal on Smart Sensing and Intelligent Systems , ISSUE 2, 644–657

case-report

Lubag Syndrome (X-linked Dystonia Parkinsonism) Case Study of Mr G. Infante

parkinsonism begin to become more prominent. Currently XDP has no cure, treatment is aimed at alleviating the symptoms to improve quality of life for sufferers. Unfortunately the treatment options, particularly in the Phillipines, are both limited and expensive. It is often the case that sufferers are isolated and unable to access treatment or support due to the financial burdens of both living with the disease and the treatments themselves. In early stages of the disease options include the use of

Vincent Cheah

Australasian Journal of Neuroscience , ISSUE 1, 7–10

Research Article

An exploration of the experience of parents with children with autism spectrum disorder after diagnosis and intervention

Delays and difficulties in both diagnosis and access to services can compound existing stressors experienced by families with children with autism spectrum disorder. Early and accurate diagnosis and appropriate intervention may not only improve child-specific outcomes but may also mitigate some of the stressors impacting family relationships and quality of life. We aimed to understand the experience of over 500 families that had sought autism spectrum disorder diagnosis and intervention, their

Ben Milbourn, Marita Falkmer, Melissa H. Black, Sonya Girdler, Torbjorn Falkmer, Chiara Horlin

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology , ISSUE 3, 104–110

Research paper

EXPLOITING ORDINAL DATA FOR SUBJECTIVE WELL-BEING EVALUATION 

The evaluation of subjective well-being, and of similar issues related to quality of life, is usually addressed through composite indicators or counting procedures. This leads to inconsistencies and inefficiency in the treatment of ordinal data that, in turn, affect the quality of information provided to scholars and to policy-makers. In this paper we take a different path and prove that the evaluation of multidimensional ordinal well-being can be addressed in an effective and consistent way

Marco Fattore, Filomena Maggino, Alberto Arcagni

Statistics in Transition New Series , ISSUE 3, 409–428

Review Paper

Recent advances in pathophysiology studies and treatment of epilepsy in neurocutaneous disorders

Introduction. Epilepsy that is associated with neurocutaneous disorders seriously deteriorates quality of life and cognitive outcome of affected children. Recent advances in epilepsy pathophysiology raise hopes for better treatment results in this difficult group of patients. Aim. The aim of this review is to present recent treatment recommendations as well as current research progress in the most frequent neurocutaneous disorders. Material and methods. We analyzed PubMed database to select the

Krzysztof Sadowski, Sergiusz Jóźwiak

Journal of Epileptology , ISSUE 2, 99–108

research-article

LACK OF ATTENTION TO GEOLOGICAL CONDITIONS INVESTING IN LAND PLOT FOR CONSTRUCTION

“tied” to a certain area. Decisions – where and what type of building to build – are very important, which determine the quality of life of people, profitability of companies as well as other results of their activities, the environment, the landscape and must be taken with responsibility in accordance to the territorial planning of the area [1]. Both the land and buildings are expensive. Davis and Palumbo [2] in analysis of the price of residential land in large US cities documented that over the

Vita URBANAVICIENE, Sarunas SKUODIS

Architecture, Civil Engineering, Environment , ISSUE 4, 87–95

research-article

COMPACT SINGLE-FAMILY HOUSING GENERATED BY PARAMETRIC DESIGN – SEARCH FOR OPTIMAL, SUSTAINABLE OR SMART DENSITIES

confirmed by Krystyna Solarek who stated that, despite the fast and chaotic development of cities, certain rules can be found: the main transportation routes of urban units points towards certain local center, and plot parcelling led to an octagonal mesh [9]. The following question may be asked based on the above-mentioned assumptions: In our times, is it possible to develop a properly compact single-family housing complex which, on the one hand, addresses the community needs of high quality of life and

Tomasz BRADECKI, Dawid KĄTNY

Architecture, Civil Engineering, Environment , ISSUE 1, 19–27

research-article

COMPLEX SPACE MONITORING DATA ANALYSIS TO DETERMINE ENVIRONMENTAL TRENDS OF POLAND-UKRAINE BORDER AREAS

Olga BUTENKO, Stanislav HORELIK, Inesa KRASOVSKA, Yevgeniy ZAKHARCHUK

Architecture, Civil Engineering, Environment , ISSUE 2, 39–56

Review Paper

Depression and anxiety in people with epilepsy: Why should we identify?

drugs, poor surgical outcome, and eventually, poor quality of life. Furthermore, depression and anxiety were closely associated with perceived stigma, obsessive-compulsive symptom, aggression, fatigue, and perceived stress. Conclusions. Clinicians who take care of PWE in a busy clinical setting should identify their psychiatric problems by brief screening tools and treat them instantly to minimize their negative impacts.

Sung-Pa Park

Journal of Epileptology , ISSUE 1, 57–62

Case report

The Life and Trials of a Pseudomeningocoele.

This case study introduces Ms Z. It discusses her story and the nursing care of her journey with a diagnosis of a pseudomeningocele. This case study was developed using direct interviews with the patient, discussions with the patient’s surgeon, research articles, viewing scans, photos and using the patient’s clinical notes. The patient’s journey with the pseudomeningocele spans over a 20 year period with many up’s and downs throughout, resulting with what is hoped to be a better quality of life

Larissa Engel, Maira Manch

Australasian Journal of Neuroscience , ISSUE 1, 33–37

research-article

Barriers and Facilitators to End of Life Care in Huntington’s Disease – A review of the literature

, Fallon, & Hollis, 2016). People with PNDs, including Huntington’s Disease (HD), which will be the focus of this report, frequently live for many years, progressively becoming more physically and cognitively disabled and enduring a decreasing quality of life (Gofton, Jog, & Schulz, 2009). While there is little written specifically about end stage HD, an improved understanding of this stage is essential to ensure existing health services are able to support people with HD in preparing for their end of

Ruth Hosken

Australasian Journal of Neuroscience , ISSUE 2, 33–42

Research Article

Personal smart travel agent for empowering persons with disabilities using public transport

, vehicle types or particular stations for health reasons. On the other hand, since most of those people are not able to drive a car on their own, making public transport available and moreover easily usable enable these people to improve their mobility and their quality of life in general. This paper shows an approach developed within the mobile project funded by The German Federal Ministry of economy and energy that allows supporting this group of users during a travel using public transport and

Jörn SCHLINGENSIEPEN, Gudrun STOCKMANNS, Edwin NAROSKA, Oliver CHRISTEN, Tobias BOLTEN

Transport Problems , ISSUE SE, 5–14

Research paper

High-dose 1,25-dihydroxyvitamin D supplementation elongates the lifespan of Huntington’s disease transgenic mice

Huntington’s disease is an autosomal dominant progressive neurodegenerative disease, which results in a decreased quality of life and an early death. A high prevalence of vitamin D deficiency was first described in a 2013 study in patients with manifest Huntington’s disease, where serum vitamin D level was found to be associated with motor capabilities of the patients. Objectives: Our objective was to investigate the effect of a high-dose vitamin D3 supplementation on

Máté` Fort Molnár, Rita Török, Evelin Sümegi, László Vécsei, Péter Klivényi, Levente Szalárdy1

Acta Neurobiologiae Experimentalis , ISSUE 3, 176–181

Article

Malignant middle cerebral artery infarct: A clinical case report

condition are then dependent on others afterwards. The nurse encouraged the family to share information about Mary: her wishes, perspective on life and current quality of life. The family was informed that DC is a major operation requiring prolonged treatment in intensive care, including mechanical ventilation and its associated risks. In particular the need to reverse Mary’s anticoagulation was a concern (risk of recurrent stroke was high as she had a metallic mitral valve and was in AF). A

Kwan Yee (Queenie) Leung, Sheila Jala, Rosalind Elliott

Australasian Journal of Neuroscience , ISSUE 1, 5–12

Research Article

Technical Features and Functionalities of Myo Armband: An Overview on Related Literature and Advanced Applications of Myoelectric Armbands Mainly Focused on Arm Prostheses

Technological advances in manufacturing smart high-performances electronic devices, increasingly available at lower costs, nowadays allow one to improve users’ quality of life in many application fields. In this work, the human–machine interaction obtained by using a next generation device (Myo armband) is analyzed and discussed, with a particular focus to healthcare applications such as upper-limb prostheses. An overview on application fields of the Myo armband and on the latest research works

P. Visconti, F. Gaetani, G.A. Zappatore, P. Primiceri

International Journal on Smart Sensing and Intelligent Systems , ISSUE 1, 1–25

Research Article

Child self-report and parent ratings for the Strengths and Difficulties Questionnaire: Norms and agreement in a Swedish random population sample

outside Sweden, parents lacking regular employment, and parents with lower education or lower quality of life. In relation to other child–parent pairs, parents born outside Sweden perceived greater difficulties for their children compared with the children’s own ratings. Parents with better physical health and social relationships rated their children as having fewer difficulties compared with the rates reported by children.Conclusions:Gender differences contrasted with prior Swedish studies showing

Bojing Liu, Karin Engström, Isabel Jadbäck, Sara Ullman, Anne H. Berman

Scandinavian Journal of Child and Adolescent Psychiatry and Psychology , ISSUE 1, 13–27

Review Paper

Natural course of treated epilepsy and medico-social outcomes. Turku studies. Part II

them enter one or more 5-year remissions. Epilepsy has a substantial impact on quality of life even in those who are seizure free off medication for many years and particularly those not in remission or in remission but still on medication. Conclusions. The prognosis is excellent for medical and social outcome. The successful outcome is confirmed by several longitudinal studies from recent decades. Good response to early drug therapy does not necessarily guarantee a favorable seizure outcome, and

Matti Sillanpää

Journal of Epileptology , ISSUE 1, 25–39

Original Paper

Actions related to International Bureau for Epilepsy during my term as President 2013–2017

, diagnosis and treatment and as a consequence, a reduction in the treatment gap and alleviation of stigma worldwide. By so doing, the quality of life of PWE and those who care of them will be significantly improved. In order to achieve these aims, the IBE joined forces with the International League Against Epilepsy (ILAE) and also the World Health Organisation (WHO), regional and national IBE organisations and other stakeholders. In addition, the participation of the IBE President in many national

Athanasios Covanis

Journal of Epileptology , ISSUE 1-2, 37–46

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